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Monday, 1 April 2013

the story of Smiler

I was wondering through the abstract archive a few days ago and realised that while Smiler is (naturally) mentioned in plenty of posts, there wasn't anywhere specific gathering up the posts about him.  People have been in touch so I know there is interest in the stark medical side as well as the day to day fun stuff, so I'm going to start listing these posts here to make it easier for people to follow him through.


One of Smiler's party tricks is that if he opens his mouth too wide his jaw can dislocate.  I know.  Great fun.  When it goes, Smiler's mouth locks open ~ he can't close it, can't swallow ... presumably it hurts, but this is the boy who self propelled his wheelchair with a broken wrist to convince us he was 'fine ... fine mummy fine' ~ and why?  'Home mummy, home time'.

* * * * *
Smiler had broomsticks ~ upper thigh to past ankle in plaster on both legs, braced with what literally was a piece of wood ~ hence 'broomstick' ~ from one knee to the other, so his lower body was like a capital A.
A couple of weeks before christmas Smiler had a run of nosebleeds and the beginning of a cold ~ you know when you can assessee it coming in the colour of their skin, the look in their eye...

So here's a slice of life from the abstract household, also known as 'They did what..? Why?'

Folks have been asking, so I'm going to try and explain Smiler a little ~ very much easier said than done, so please bear with me!  Everyone take a deep breath . . .

So, poor Smiler, this was what we did to him.  You can imagine all the fun you can have with an eight year old with both legs in plaster...


Smiler had his annual check up in Southampton a few days ago ~ I  genuinely hadn't realised that I'd been worried about it, but the amount of relief I felt when we were told everything looked good ~ it's difficult to explain.
this is my 'people who don't know Smiler' alphabet ~ the 'people who do know Smiler' will be following soon!
always an individual with his own clock, Smiler arrived three weeks late at St Michael's Hospital ...
once you've been on the disabled child merry ~ go ~ round for a few years, you get to know what's coming ...
Smiler had a routine neuro appointment back in May 08, when his consultant thought he could see a slight curve in Smiler's spine ~ a fairly common finding in children with neurological issues ...
I guess many, if not all, children with additional needs go through phases where everything kind of rumbles along, nice and calm, and times when things are more difficult ...

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