Sunday, 16 March 2014

A quick abstract update

I'm finding things difficult at the moment, which is the reason for the radio silence.  I often find March hard going - my father's birthday, as well as my brother's, as well as Mother's Day, all in one month - I always get kind of pensive.  And then I get pissed off that I'm pensive.  Especially as it is also Noah's and Mr Manley's birthdays this month too.  And then I get pissed off that I'm pissed off.  So you can see how this goes.

I think Mother's Day is the big one for me - raises bucketloads of I'm crap at this thinking, and the lower I get, the worse mother that makes me.  The more taking care of me Mr Manley has to do, the less time and energy he had for the kids, so not only do I fail then as a parent, I also eat into the single biggest, most important positive thing that they have - an enthusiastic and loving and consistent dad.  And I don't know how to fix that.

Friday, 7 March 2014

Word of The Week

My word for this week, joining up with the ever enthusiastic Jocelyn of the Reading Residence Word of the week Linky :

sat·is·fied   (săt′ĭs-fīd′)
1. Filled with satisfaction; content: a very satisfied customer.
2. Paid or discharged in full, as a debt or obligation.
3. Convinced beyond a doubt.

I'm not entirely sure my word is as accurate as I'd like, so here are a few more, all equally applicable to this week - knackered; proud; tired; emotional; wiped out...

I knew it was going to be a busy one, with Noah's birthday as well as our (Bristol Parent Carers) annual participation event, and while there were no major disasters, the sheer amount of activity was bound to be a struggle, so all in all I'm pleased to still be standing!  While I still question the logic of the person who handed me a microphone and a cadburys creme egg at the same time (right before I had to make a presentation in front of two hundred ish people, made up of parent carers, and professionals from health, education, social care and various other council officers), it mostly made sense, so I'm told, and I'm happy with that!

Right now, the exhaustion is winning though, so I'm going to leave it there.  I don't know why the paragraphs are lined up strangely, and have neither the energy nor the concentration to work it out ... sorry!  I hope you all had a good week and are looking forward to the weekend - there's sunshine in Bristol this afternoon, so fingers crossed it's here to stay, for a few days at least!

The Reading Residence

Saturday, 1 March 2014

In February...

...we played with clay

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... Noah and I had words ... several times

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what's wrong with him? {disability and communication}

As medical technology and techniques improve, there are more and more children surviving premature birth, congenital defects, cancer, and many many other health related challenges.  A logical consequence of this is that as time passes there will be more toddlers with disabilities, both congenital (present at birth) and acquired (a result of disease, condition or circumstance occurring after birth), and thereafter more children; more teenagers; more adults.  

Hand in hand with increased numbers of children with visible and invisible disabilities, there is a (slow growing) recognition of some disability related issues - both on a big picture society-as-a-whole type scale, and on an individual level.  The nationwide behind-the-scenes stuff includes changes in legislation; funding to encourage participation; as well as impacting in more obvious ways on disabled people's day to day activities - the increase in accessible toileting and changing facilities for example.  These top down changes can make a genuine difference to the quality of life for some, while others might find it more difficult to pinpoint changes relevant to them.  I think I notice less people staring now than I did ten years ago - perhaps because seeing disabled children out in public with their families has become less of a rarity and more (oh yes, that word) ... more normal.  Of course that might also be partly due to my not noticing the stares as much, but I'd like to think that times they are a'changing!

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