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Sunday, 1 June 2014

Positive Pic of the Week


This is my positive pic of the week, linking to Tracey of Tantrums and Glitter, who started all this!

This in case you weren't aware, is my son.  He's Smiler here on abstractLucas, and while he's been around for twelve and a half years now (six months until I have a teenager!) he is not your boring ordinary twelve year old.  Kinda reminds me of Animal Farm and 1984 - we're all equal, but some are more equal than others.  Smiler is not equal.  He is unique.

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This photo shows him holding a picture book, utterly focused, utterly involved.  A woman sitting next to him looks at the pages too - she is a close friend and great support to an elderly relative I care for very much.

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Doesn't sound like much, I guess.

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But what you can't tell from looking at this picture is that he is telling her the story.  Although he cannot read, he has shared this book with others who do - me, his dad, his sister, student doctors, the receptionist at the dentist - so many times that he now knows the story.  The pictures remind him what happens next and he can talk you through the whole story - not word for word, but complete with catchphrases and the occasional sound effect.

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What I see when I look at this photo is his desire to communicate.  With his (as it turned out hugely inaccurate) prognosis we were warned he would not ever smile or speak or sign - his malformed brain was incapable of retaining information, so he could not develop in any way.  No purposeful movement, no communication, no recognition.  Smiler has had lots of input over the years focusing on what we felt were the most important skills for him to get a handle on, and this photo shows me how far he has come.  His glasses on, sat calmly, turning the pages, pointing at the characters and adding in snippits of relevant information.  Confident.  Sounding his words clearly enough to be understood (well enough) by someone who doesn't even live under the same roof as him.

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He is sharing a story with his friend.

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I love you sweetheart.

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2 comments:

  1. I work as an SEN teaching assistant and it is so rewarding when the children develop and make progress, no matter how small. Lovely photo, thanks for linking up ;) #pospicofweek

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  2. I loved reading this! Smiler is indeed so special and unique! The picture is so great too, you can see such focus. Keep up the great communicating !

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